View Full Version : I dont tell much people about my disease its really upsetting when im alone.


eclps0
12-08-2003, 01:43 AM
When I was two years old I was in the hospital because I stopped breathing. They revived me and found out that I had a viral virus that attacked the heart. When I was about 10-12 years old I was diagnosed with a heart disease I went to about 4 doctors and said if my heart gets worse I have to get a heart transplant. A few years down the road the doctors said my heart got a lot worse. My ventricles are enlarged and my heart is only working 42%. Recently I was in the hospital for a heart attack. I woke up one morning with severe chest pains and I couldn't breathe.My mom called the 911 and paramedics and ambulance came to my house. They said my heart rate was over 280 per min the norm (60 per min) . Ever since then my heart is getting weaker. . After the doctor diagnosed my heart being worse they said if it goes down to 41% I have to go on a donors list. So I basically try to live my life the best I can because one day I might not be here.

Lock & Load
12-08-2003, 02:01 AM
eclpso

Us yidds have to stick together , some of us are dealt a lousy hand , however we have to do our best with whatever senario we are in , its great that you can get out and enjoy your ride .
There is a young bloke here in Australia who recently had a lung /heart transplant , hes out and is bussy enjoying his modified ride from memory it was a mitshubitsu.
While hestill is recovering he is making the most of it , i will try and see if i can make contact with him if you would like to communicate with him.?

michael

eclps0
12-08-2003, 02:04 AM
if u dont mind

Lock & Load
12-08-2003, 02:09 AM
eclpso

The story on this guy was on tv , some time ago but i will try and do my best , why was your other thread removed titled , about a sad movie etc.

michael

eclps0
12-08-2003, 02:22 PM
i wanted to keep this one instead of the thread about the movie.

compaddict
12-08-2003, 02:49 PM
My father in-law just had a transplant and two years later he's doing just fine.
You have a lot going for you that most heart patients don't have so keep your head up.
I really hope you do well.

Vince

eclps0
12-08-2003, 02:56 PM
Those are very kind words for someone you do not know, I am grateful that there nice people on this forum. Even though I have a heart disease i am not going to let it run my life. I am in school for digital media productions. After I get my bachelors in science I want to go back to school to race in road racing and maybe cart. This problem does not run my life or should not let it run my life.

cruzdreamer
12-08-2003, 04:34 PM
Gosh, I hope things improve for you. I have some heart issues too....nothing major like that though! (Mitral Valve prolapse)It's scarry I know and you keep your head up and fight. Enjoy each day. You seem like your attitude is good and that will help you each day! Good luck to you and be well!!! Enjoy your blue 8!!!

eclps0
12-08-2003, 04:41 PM
I wish u luck with your heart problem. Its sad to know that im not the only one with a problem with there heart on this board. I would never want someone that i know or talk to have problems with there heart.

CERAMICSEAL
12-08-2003, 08:55 PM
So sorry to hear this news dude.Your'e in my thoughts and prayers. Let me know if there is anything I can do. Keep us informed.

Aesculapius
12-08-2003, 10:46 PM
Good luck....I do hope that things stabilize for you.

I treated an 18 year old girl with viral endocarditis (I am assuming this is what you had) that also developed some cardiomyopathy (I am assuming this is what you do have). She was in the intensive care unit for a while, but we were able to get her out for prom and graduation. Last time I heard, she was doing okay.

If you have any questions about anything, let me know. I am a family doc in Minnesota.

eclps0
12-08-2003, 10:54 PM
That exactly what I had when I was young and I now have cardiomyopathy

eccles
12-08-2003, 11:54 PM
Good luck to you, man. A good friend of ours just came out of a triple-bypass this afternoon, so I feel for you.

cruzdreamer
12-09-2003, 08:57 AM
Eclps0....thanks but you take care of yourself and when you are feeling down about it that is only human.....you can't be up all the time...you are human. Definitely talk to those who care when you are feeling scared and alone in this......it does not make you a weak person. We never know when God choses to take us and why....but live each day to it's fullest!!

klegg
12-09-2003, 03:20 PM
Geez, you are having a bad run...but try to keep your chin up! They are making great strides in every facet of medical science...believe me I know!

Remember, things tend to turn out well for good people!

Ohgeez
12-09-2003, 04:05 PM
eclps0,

First, God bless, and I will say a prayer for you tonight.

Second, I have deep admiration for people who move on through life regardless of the cards they've been dealt with. So many "fortunate" individuals fail to see how lucky they are.

My cousin (and best friend) was born with cancer. I was born on 9/03/69 and him 9/15/69. The doctors told my Aunt that he wouldn't live to see the age of 2. Well, he made it. Then they said he would make it to 4 yrs old. Well, guess what? He made it again. This scenario went on for years and years (with the doctors) until he died last year. We never gave up on him and we enjoyed ever single day that he lived. So, to all who have a disease or terminal illness, never give up. :)

Sorry about the long post but here's something that I came across a few years ago. Hope you enjoy.

Promise Yourself.

To be so strong that nothing can disturb your peace of mind.
To talk health, happiness and prosperity to every person you meet.
To make all your friends feel that there is something in them.
To look at the sunny side of everything and make your optimism come true.
To think only of the best, to work only for the best and expect only the best.
To be just as enthusiastic about the success of others as you are about your own.
To forget the mistakes of the past and press on to the greater achievements of the future.
To wear a cheerful countenance at all times and give every living creature you meet a smile.
To give so much time to the improvement of yourself that you have no time to criticize others.
To be too large for worry, too noble for anger, too strong for fear, and too happy to permit the presence of trouble.

Racer X-8
12-09-2003, 05:07 PM
eclps0, man, don't give this a chance to affect yourself. Do what the doc's say, then let it go and live like there's nothing wrong. Don't let it haunt you all the time. Can you do that? Do you dwell on it all the time?

What do you mean about the duplicate thread, that you chose to keep this one instead? I don't get that. Can you only have one thread at a time?

pelucidor
12-09-2003, 05:56 PM
So sad to read this. Puts all my problems into perspective. Good luck and try to make the most of every day. Faith and medical science won't let you down.

eclps0
12-09-2003, 07:17 PM
I usually don’t talk about my heart disease or even think about it but lately I have been experiencing chest pain. I am a fighter I will not let his problem take me with out a fight. I don’t want to die now or die down the road but in time everyone dies so I am used to it. I am so used to it because I have lost so many in the past years

sup3rbad
12-10-2003, 01:10 AM
I wish you the best of luck bro. i don't exactly know how to spell it, but Carpe Diem (Seize the day). Keep fighting man. If anything is worth fighting for, its life. Take care and I wish you the best of luck and hope you live a long fulfilling life.

chopsticker
12-10-2003, 02:46 AM
Good luck from me too. I have some heart problems as well, mitral valve regurgitation and arrhythmia. I know they're not nearly as bad as your condition but I just wanted you to know you have my respect and best wishes for continuing to fight. I had to stay in the hospital for weeks as a child and can understand just how painful that experience can be and I hope you will win this fight. :)

Racer X-8
12-10-2003, 06:42 AM
eclps0, I literally stumbled upon this on the internet just now. My co-worker just called-in, his wife is in Seattle & wound up in the hospital last night because of Tomain Poisoning. I wanted to find out what that was, so I was doing a search for info, and stumbled upon this story. My thoughts then shifted towards you. So, here you go. You can take it or leave it, but just read it please...

Saying the Blessing...
This is a true story. It is a story of one of the "TIMES" in the life of a young private shortly after he got into the Army. All of us who call ourselves "Christians" have had this battle in our "Christian walk". The battle is "Will we acknowledge Jesus as our Lord in front of our peers, in public, in private, at McDonalds or at a relatives house?" We will ALL one day stand in judgement for EVERY thought, word and deed. This is the story of how a young private passed this test by honoring God and God honored him in return.
"It was always our practice at home to 'Offer Thanks' before we ate at every meal. When I went into the service, Army, and went to chow for the first time I talked to myself and asked 'Are you going to Offer Thanks' or not? I struggled all the way through the chow line with this question. By the time I got to the end of the line and got to my table which was almost filled I had made up my mind. I sat down and bowed my head and 'Offered Thanks' for the food. Some paid attention and some just ignored me. That first time was the hardest. After that the guys would wait for me until I 'Said the Blessing'. This continued all through basic training and through Supply School. Then the Army sent me over seas with 22 men from my supply class to Okinawa. One Sunday in May or June in 1949 we were served cold cuts or leftovers for lunch. (We usually had leftovers for Sunday lunch) We all went through the chow line and the guys at my table sat and waited for me to get there and 'Offer Thanks'. I bowed my head (and they did also) and asked the Lord to bless the food and we ate. After lunch we went back to the barracks for rest and relaxing; and then we heard all these trucks lining up at the battery street. Almost 200 men were put on the trucks and taken to the dispensary because of Tomain Poisoning. (The food we had eaten at lunch had caused it.} NOT ONE of the men that sat at my table that had bowed his head for the Blessing got sick. NOT ONE had any after effects. We had honored God by taking a stand and He had honored us in return by protecting us. He kept us from being sick and we give the Lord Praise and Glory for it. At that time I was serving as the Battery Clerk. I was in the 65th AAA Gun Battalion Battery "C". I was just a PFC living for the Lord in the military."
"signed" David P. Baker, Sr., FCF name; "Little Beaver" email address; davidbakersr@juno.com

CERAMICSEAL
12-10-2003, 09:38 PM
eclpsO,
I think you're the most loved person on this forum; with or without your misfortune. Thanks for sharing with us so that we can share with you.

klegg
12-10-2003, 10:03 PM
Originally posted by CERAMICSEAL
eclpsO,
I think you're the most loved person on this forum; with or without your misfortune. Thanks for sharing with us so that we can share with you.


Ceramicseal,

The more you post, the more I realize what a class act you are. It is a pleasure to be on this forum with you.

CERAMICSEAL
12-10-2003, 10:23 PM
Thanks klegg. You made my evening. I can go to sleep with a big smile now. Peace, and right back at you with the compliment.:)